Endometriosis: Support & Education

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I recommend the following for education, information and general support on endometriosis. I'm still fairly new to the endo world, so as I learn and come across more helpful sites and information, I'll make sure to add it here too, so check back now and then.

Endo What? ~ website & film 

The Endo What? film is a film about endometriosis ~ what it is, how it can feel to live with it, what can help and what doesn't.

"This film is being made for you. Whether you have or think you have endo or love someone who does, the goal is to give you a foundation of knowledge - straight from the experts."

The Endo What? website has some important information about endometriosis, it's also where you can purchase the Endo What? film and subscribe to their newsletter to stay up-to-date with their latest news.

You can also find Endo What? on twitter, instagram, and facebook.

The British Society for Gynaecological Endoscopy (BSGE)

"The British Society for Gynaecological Endoscopy exists to improve standards, promote training and encourage the exchange of information in minimal access surgery techniques for women with gynaecological problems."

The BSGE website has a section dedicated to Accreditted Endometriosis Centre where you can search for centres near you ~ Centres Archive. I've only just found mine and will be requested that my GP refer me as soon as possible.

You can also find the BSGE on twitter.

Carol Pearson's ‘Rewriting Red Riding Hood’ TEDxBrighton Talk

"Carol is a retired chartered accountant. When her full-time career was cut short by complications from severe endometriosis, she had to re-create herself and she now works as an audit chair for NHS Crawley Clinical Commissioning Group. Carol helps as a research assistant at Royal Surrey County Hospital and is co-leader of endometriosis support groups in Brighton and Guildford."
(Endometriosis UK) 

Carol also volunteers as patient leader and activist at Endometriosis UK. She is passionate about raising awareness of Endometriosis and helping those affected by it. In 2013 she did the above TEDx Talk where she shared her story.

You can also find Carol Pearson on twitter.

Georgie Wileman's 'This is Endometriosis' project

Georgie Wileman is a British protographer based in Brooklyn, New York. Georgie also has endometriosis, and the 'This is Endometriosis' project "began as a self portrait series, due to pain and limited mobility caused by the disease". The project now also includes others with endometriosis. Georgie adds that...

"With this project I want to make this disease visible. This is what it looks like. One in ten women and trans men have this, and we need to be seen." 

You can also find Georgie Wileman on instagram.

This EndoLife ~ blog and podcast 

Jessica Duffin runs the This EndoLife blog, where she talks about life with endometriosis, as well as the endo diet and lifestyle changes that can be made to help manage symptoms. Jessica also has an awesome podcast where, alongside guests, she talks about all things to do with chronic illness. I've learned a lot from her and always find relief in being reminded that I'm not alone. Jessica's mission is to...

"empower people all over the world to create a happier and healthier life with endometriosis."

You can also find This EndoLife on instagram, twitter, and facebook. The podcast can be found here.

Endometriosis UK

Endometriosis UK is the leading UK charity dedicated to endometriosis. The Endometriosis UK website has some really important and useful information about endometriosis. The charity aims to...

"provide vital support services, reliable information and a community for those affected by endometriosis." 

You can also find Endometriosis UK on twitter, instagram, facebook.

Endometriosis UK Support Groups

It can be really tough for those with a chronic condition to find others who understand what we're going through, sometimes we just need someone to say "me too!". This is why I recommend finding a support group. I've recently started going to Endometriosis UK's Support Groups; I go to the ones in London. You can find a list of support groups and their locations here.

"Endometriosis UK Local Support Groups offer anyone who is affected by endometriosis the chance to meet each other locally for information, support and friendship."

Upcoming Endometriosis Events in London

11th October 2018 (Thursday) 6:30pm - 8:00pm - Dr Natalia Zarate-Lopez is a Consultant Gastroenterologist at UCLH who will be speaking on bowel symptoms and endometriosis.
Address: UCLH - University College London Hospital, 235 Euston Road, London NW1 2BU (Meeting held at Clinic 3, LG Floor, EGA Wing).

08th November 2018 (Thursday) 6:30pm - 8:00pm - Dr Natasha Curran, Consultant in Anaesthesia and Pain Medicine at UCL will be speaking about endometriosis and pain management
Address: UCLH - University College London Hospital, 235 Euston Road, NW1 2BU (Meeting held at Clinic 3, LG Floor, EGA Wing).

17th November 2018 (Saturday) 9:30am to 4:30pm - Endometriosis Research Now Conference
Address: 35 Marylebone Road, London, NW1 5LS
Notes: For more event information and to register click here -> https://www.endometriosis-uk.org/civicrm/event/info%3Fid%3D627%26reset%3D1#.W6oZimhKjIU.
Delegate fees, including refreshments and lunch:
Individual - £38.50
Individual, unwaged - £10.00

20th November 2018 (Tuesday) 6:30pn – 8:00pm - Maria Elliot (from Simply Women’s Health) will be speaking about women’s health physio and the benefits for endometriosis. Partners / family / friends / colleagues etc are all welcome.
Address: Guy’s Hospital (London Bridge), Great Maze Pond, London SE1 9RT ( Meeting held at McNair Centre, Southwark Wing).
If you have any other suggestions in terms of information and support for those affected by endometriosis, please do share it with me :) You can leave a comment below, or message me on instagram or on unapologeticallyelly@gmail.com.

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